It’s been a long time since we’ve published anything on our blog. But today we had to! We needed to share our joy with all of you! We’ve been added to the website Enerca, the European Network for Rare and Congenital Anemias. Enerca is a network of professionals, research centers and hospitals that are committed […]
Recently, elpetitbernat has been made available in English. This means that all of the information about Pyruvate Kinase Deficiency and about little Bernat is available to many more people on the planet. But don’t think we did this ourselves! It was a marvelous act of support carried out by strangers. And today, of course, we […]
This morning was the kickoff of the Blood Donors’ Marathon 2.0, where the opening ceremony in the Plaza Catalonia had a marvelous atmosphere. There, we were fortunate enough to meet some authentic heroes who have donated and received blood. There were several buses and tents filled with volunteers, where many people decided to donate blood […]
The 2016 Blood Donation Marathon began today, which addressed the importance of donating blood. Yesterday we had the privilege of being guests on the famous Catalonian television program, Els Matins. The interview, hosted by Núria Solé and Cristina Macías, lasted about 20 minutes. Together with Enric Contreras (Coordinator of the Central Territories Blood and Tissue […]
Bernat is one of the ambassadors of the 2016 Catalonia Blood Donors Marathon 2.0. For this reason, Bernat has participated in the emotional campaign “The Fate of Donating Blood” (the featured video) made by our friends at the Blood and Tissue Bank of Catalonia.
On the day of the Blood Donors Marathon 2.0, media organizations such as Television of Catalonia (TV3) and Barcelona Television (BTV), mentioned the marathon on their programs. And for good reason, Bernat was one of the youngest guests there.
On November 29th, blood donors will be featured in The Point Today with the motto #GivingTuesday. The article will describe how donors can help people in need through blood drives. The blood drive hopes to reach one thousand donors. Like other occasions, Bernat is going to be at the event. He will be there to […]
A few days ago, we were informed about Radio 4’s fantastic broadcast about Bernat and his illness. Last Saturday, in the same program as Amica i Coneguts, they dedicated their time to our little boy and to Pyruvate Kinase Deficiency, as well as to the importance of donating blood in our country. This time however, […]
Last Saturday, in Nave Ivanow de San Andreu, a concert took place for Aitor. Aitor is a five year old boy that suffers from a rare disease called Duplication of MECP2 Syndrome (for more information about the disease, visit this link). His parents started a series of proposals to raise money to continue researching the […]
This past Wednesday (the 18th), BTV news (Barcelona Television) gave a small report on Bernat and the Blood Bank to highlight the importance of donating blood, as well as to share Bernat’s goal of reaching 1,000 new donations by Christmas. The report informed people about Bernat and his disease of Pyruvate Kinase deficiency, and it […]
