Last Tuesday, May 19th, Bernat visited the hospital to receive another blood transfusion. Since we visit the hospital every three weeks, we want to tell you what happens during these special treatments. Today, we would like to explain what these visits consist of, and what to expect. Today it started at home, when at first […]
Last weekend, Bernat had a visit with the Neurological Team of the Sant Joan de Déu Hospital. They had him marked for a strict follow-up due to the psychomotor delay that caused the creation of the Pyruvate Kinase Deficiency Disease. The great difficulty in the transport of oxygen and a massive destruction of Red Blood […]
Yesterday, Bernat received a new blood transfusion. The fiftieth one, including all the blood transfusions he has had in the past three years. He is always brave, and in the photo one can see that he is calm and happy. We want to take this time to thank the hematologists of San Joan de Déu […]
Today is a special day, it’s the day that we open the new website called El Petit Bernat (Little Bernat), a site dedicated to Bernat and his illness: Pyruvate Kinase Deficiency. With this site, Bernat’s parents want to make this disease known to people, so everyone can understand the little things that they can do […]
