Last week, Barcelona was ready for a party. “La Merce” festival gave life to the city with all kinds of activities and events. Among these events, we attended the 20th anniversary ceremony of the Association of Barcelona in the Plaza Cataluña and surrounding areas. There, all kinds of associations and federations from the social field […]
This Saturday, September 26th, in the Gardens of Palau Robert, the 5th Festival of Hospital Sant Joan de Déu will be held. This year it is called the Festa dels Petits Valents (Festival of the Little Brave People), in order to pay homage to the patients of the hospital. Just like in the past, it […]
On June 11th, Bernat received another blood transfusion in San Joan de Déu Hospital. As explained above, upon arrival he underwent a blood test in order to determine his levels of red blood cells. During this visit with the doctor, we were informed that this time his red blood cell levels were lower than usual. […]
Last Tuesday, May 19th, Bernat visited the hospital to receive another blood transfusion. Since we visit the hospital every three weeks, we want to tell you what happens during these special treatments. Today, we would like to explain what these visits consist of, and what to expect. Today it started at home, when at first […]
Last weekend, Bernat had a visit with the Neurological Team of the Sant Joan de Déu Hospital. They had him marked for a strict follow-up due to the psychomotor delay that caused the creation of the Pyruvate Kinase Deficiency Disease. The great difficulty in the transport of oxygen and a massive destruction of Red Blood […]
Yesterday, Bernat received a new blood transfusion. The fiftieth one, including all the blood transfusions he has had in the past three years. He is always brave, and in the photo one can see that he is calm and happy. We want to take this time to thank the hematologists of San Joan de Déu […]
Today is a special day, it’s the day that we open the new website called El Petit Bernat (Little Bernat), a site dedicated to Bernat and his illness: Pyruvate Kinase Deficiency. With this site, Bernat’s parents want to make this disease known to people, so everyone can understand the little things that they can do […]
Today, the children of the Day Hospital received a very sweet gift: two chocolate sculptures that are authentic works of art. The bakery Llorenç from Viladecans created these treats voluntarily, and brought a little bit of happiness to the children that were there. One sculpture was dedicated to the mythical Disney movie “The Lion King”, and […]
At the Day Hospital, the nervous children are awaiting the upcoming holiday. Three Kings Day or “Little Christmas” has distracted them of their worries due to a very special visit. FC Barcelona Players, Rakitic and Mascherano, have made an appearance at the hospital with presents in hand. Bernat didn’t understand much, but he spent some […]
After a while, we questioned if the Pyruvate Kinase Deficiency is in the Metabolic Guide of Sant Juan de Deu, and now we can happily say: it is! Thus, the Metabolic Guide increases the number of Inborn Metabolic Errors to 68 diseases in its network with the addition of the Pyruvate Kinase Deficiency (PK).s. You […]
