On November 29th, blood donors will be featured in The Point Today with the motto #GivingTuesday. The article will describe how donors can help people in need through blood drives. The blood drive hopes to reach one thousand donors. Like other occasions, Bernat is going to be at the event. He will be there to […]
A few days ago, we were informed about Radio 4’s fantastic broadcast about Bernat and his illness. Last Saturday, in the same program as Amica i Coneguts, they dedicated their time to our little boy and to Pyruvate Kinase Deficiency, as well as to the importance of donating blood in our country. This time however, […]
Last Saturday, in Nave Ivanow de San Andreu, a concert took place for Aitor. Aitor is a five year old boy that suffers from a rare disease called Duplication of MECP2 Syndrome (for more information about the disease, visit this link). His parents started a series of proposals to raise money to continue researching the […]
This past Wednesday (the 18th), BTV news (Barcelona Television) gave a small report on Bernat and the Blood Bank to highlight the importance of donating blood, as well as to share Bernat’s goal of reaching 1,000 new donations by Christmas. The report informed people about Bernat and his disease of Pyruvate Kinase deficiency, and it […]
This past Saturday, on the radio program Friends and Acquaintances, Bernat and a Pyruvate Kinase Deficit were the protagonists of a fantastic report carried out by Sergi Bassolas. During the ten minute program, the listeners learned about Bernat’s history, his ailment, and the importance of donating blood for those in need. We want to thank […]
“Donors are saving the life of my son, Bernat“: this is the title of an article in “La Vanguardia“, one of the daily newspapers in our country which has dedicated one of its interior pages to our story. On Thursday, Rosa M. Bosch and her photographer, Llibert Teixidó, came to visit at our house for […]
On October 24th, we celebrated the second Red Day, a day dedicated to the families that donate blood, and created for the Association of Blood Donors of the Saint Pau Hospital. The main objective of this fantastic event is for children to see the positive effects of donating blood, spend time with their families, and […]
The Race for Hope was held this past Sunday, organized by FEDER (Spanish Federation of Rare Diseases). It’s a spectacular way to pay homage to rare diseases, and raise awareness about the causes and effects of these diseases through sports. The race was divided into three distances: 10 kilometers, 5 kilometers, and a family friendly […]
Apart from chronic transfusions, Bernat should continue periodic checks regarding possible changes that could cause sickness and more transfusions. For example, at the end of July, we mentioned an MRI, but since then, he has needed other check ups done on the heart, the liver, the sight, and the hearing. This is all because of […]
Last Tuesday the 29th Bernat received another blood transfusion. Even as his parents it’s hard to know exactly how he is actually feeling. He had been tired for a few days but as usual he was still eager to do everything. In fact, even when he first arrived at the hospital he kept talking and […]
