It’s been a long time since we’ve published anything on our blog. But today we had to! We needed to share our joy with all of you! We’ve been added to the website Enerca, the European Network for Rare and Congenital Anemias. Enerca is a network of professionals, research centers and hospitals that are committed […]
Thanks to the creation of this website, elPetitBernat.com, we have been able to disseminate clear and comprehensive information about Bernat’s illness. It’s clear that Bernat is the protagonist of our page, but we have also been able to use the site to inform many people about the importance of donating blood, being a marrow donor […]
Recently, elpetitbernat has been made available in English. This means that all of the information about Pyruvate Kinase Deficiency and about little Bernat is available to many more people on the planet. But don’t think we did this ourselves! It was a marvelous act of support carried out by strangers. And today, of course, we […]
Last Thursday, February 4th, while Bernat was receiving his transfusion, we had a lovely visit from somebody special. It was Salvador Tejero, one of the most senior and beloved volunteers at the Sant Joan de Déu Hospital. It had been several months since we had last seen him. We thought that maybe they had changed […]
This morning was the kickoff of the Blood Donors’ Marathon 2.0, where the opening ceremony in the Plaza Catalonia had a marvelous atmosphere. There, we were fortunate enough to meet some authentic heroes who have donated and received blood. There were several buses and tents filled with volunteers, where many people decided to donate blood […]
The 2016 Blood Donation Marathon began today, which addressed the importance of donating blood. Yesterday we had the privilege of being guests on the famous Catalonian television program, Els Matins. The interview, hosted by Núria Solé and Cristina Macías, lasted about 20 minutes. Together with Enric Contreras (Coordinator of the Central Territories Blood and Tissue […]
Lately, we have not discussed the blood transfusions that Bernat has been receiving in our blog. Although there have been many ups and downs, some weeks are more difficult than others. But at this time, we have decided to announce something: one of the hematologists helping Bernat has become famous! Ruben, who has been with […]
Bernat is one of the ambassadors of the 2016 Catalonia Blood Donors Marathon 2.0. For this reason, Bernat has participated in the emotional campaign “The Fate of Donating Blood” (the featured video) made by our friends at the Blood and Tissue Bank of Catalonia.
On the day of the Blood Donors Marathon 2.0, media organizations such as Television of Catalonia (TV3) and Barcelona Television (BTV), mentioned the marathon on their programs. And for good reason, Bernat was one of the youngest guests there.
On December 28th, 2015, in Barcelona, the Catalan Blood Donor Marathon 2.0 was announced, and it was held January 15-22 of 2016. Ada Colau (The Mayor of Barcelona), Gemma Tarafa (The Commissioner of Health), and Enric Argelagués (The Director of the Blood and Tissue Bank) were the managers of the event. This year, the marathon […]
