A few days ago, we were informed about Radio 4’s fantastic broadcast about Bernat and his illness. Last Saturday, in the same program as Amica i Coneguts, they dedicated their time to our little boy and to Pyruvate Kinase Deficiency, as well as to the importance of donating blood in our country. This time however, […]
Last Saturday, in Nave Ivanow de San Andreu, a concert took place for Aitor. Aitor is a five year old boy that suffers from a rare disease called Duplication of MECP2 Syndrome (for more information about the disease, visit this link). His parents started a series of proposals to raise money to continue researching the […]
This past Wednesday (the 18th), BTV news (Barcelona Television) gave a small report on Bernat and the Blood Bank to highlight the importance of donating blood, as well as to share Bernat’s goal of reaching 1,000 new donations by Christmas. The report informed people about Bernat and his disease of Pyruvate Kinase deficiency, and it […]
This past Saturday, on the radio program Friends and Acquaintances, Bernat and a Pyruvate Kinase Deficit were the protagonists of a fantastic report carried out by Sergi Bassolas. During the ten minute program, the listeners learned about Bernat’s history, his ailment, and the importance of donating blood for those in need. We want to thank […]
“Donors are saving the life of my son, Bernat“: this is the title of an article in “La Vanguardia“, one of the daily newspapers in our country which has dedicated one of its interior pages to our story. On Thursday, Rosa M. Bosch and her photographer, Llibert Teixidó, came to visit at our house for […]