On October 24th, we celebrated the second Red Day, a day dedicated to the families that donate blood, and created for the Association of Blood Donors of the Saint Pau Hospital. The main objective of this fantastic event is for children to see the positive effects of donating blood, spend time with their families, and […]
The Race for Hope was held this past Sunday, organized by FEDER (Spanish Federation of Rare Diseases). It’s a spectacular way to pay homage to rare diseases, and raise awareness about the causes and effects of these diseases through sports. The race was divided into three distances: 10 kilometers, 5 kilometers, and a family friendly […]
Apart from chronic transfusions, Bernat should continue periodic checks regarding possible changes that could cause sickness and more transfusions. For example, at the end of July, we mentioned an MRI, but since then, he has needed other check ups done on the heart, the liver, the sight, and the hearing. This is all because of […]
Last Tuesday the 29th Bernat received another blood transfusion. Even as his parents it’s hard to know exactly how he is actually feeling. He had been tired for a few days but as usual he was still eager to do everything. In fact, even when he first arrived at the hospital he kept talking and […]
